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A petition to approve drugs to help save my life

moparcanuck

Deceased, But not forgotton
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Jul 2, 2009
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Location
Ottawa,Ontario
This petition is to have drugs approved for the treatment of Multiple Myeloma in Canada. Many drugs already approved in the US and Europe are still not approved here in Canada. I suffer from this rare bone marrow cancer. It is currently not curable but with the appropriate drugs, it is treatable. Please help me to live a long life by signing this petition.

Thank you.

https://www.change.org/en-CA/petitions/minister-of-health-honourable-rona-ambrose-approve-the-orphan-drug-regulatory-framework
 
sorry to hear that... good luck... get well soon... is this for Canadian only ??, I tried & it didn't work... Tried again it worked... hope it gets approved soon, it says 5-7 years for approval usually IIRC, not sure how long it's been in the works...
 
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Good luck. I just signed.
 
Signed and good luck.
 
signed it as well. Hope it helps you and others.
 
I'm in! Just signed, best wishes, good luck!
 
Done. can you get treatment here?
 
Cancer Surviver here 15 years Stage 4, don't waste a moment, Go directly to University of Rochester, or Cleveland Clinic or go to Sloan Kettering take what ever money you can gather do it!

Also signed!
 
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Thank you all for your support.

I was diagnosed in 06, had chemo and stem cells were collected from me at that time for a transplant. When I went in to schedule the transplant, I was told that the chemo worked and that my blood was normal and that the transplant could wait. My stem cells have been frozen for 8 years waiting for the day that I need them. I'm hoping that day never comes. But when it does, I'll need those drugs to help me survive.
 
Moparcanuck - I signed as well.

There are a couple of really cool new cancer drugs that are in development and near approval. One is from Merck and has been given breakthrough status by the FDA. (Drugs can either have standard review by the FDA which takes 1 year, accelerated review for a drug for an unmet medical need - this means review in 6 months, or listed as a breakthrough product, where the FDA actually helps to assure it rapidly gets to the public.)

Normally, if anything foreign enters your body the white blood cells attack it and kill it, keeping you safe. Even if your own cells have a problem your body typically recognizes that and attacks the cells to get rid of it. Cancer cells are not seen as problem cells by the body, so your body does not attack and kill them. Most current cancer treatments are not very precise, they attack lots of things in the body which is why chemotherapy, for example, can be so devastating.

Anyway, what is really interesting about this new set of drugs is that it does not attack or go after the cancer cells. All it does is "unmask" the cancer cells so your body recognizes it as a problem, and then your body's white blood cells attack and destroy the cancer at a cellular level. The Merck drug is currently indicated for Melanoma and has shown fantastic results, but it is being tested for other types of cancer as well. There are a couple of other drug companies working on similar drugs.

The bottom line is that I have high hopes that we are on the eve of a new set of much better cancer drugs. I have high hopes that many folks struggling with cancer can be helped by these. I just hope they are fast enough for people like my mother-in-law...
 
I signed as well. All the best.
 
Hi Bernie, I hope you never need those stem cells either. I had a good friend who had NHL, he had his harvested and when his cancer came back those cells saved his life.

I signed the petition, hopefully the drugs will be approved soon. The drugs that Hawk mentioned sound very promising also.

Best of luck to you.

John - Montana
 
just signed up, good luck. hope everything works out good for you. USARR.
 
Just signed it Bernie.
I wish you all the very best with your quest for the treatment you need.
 
moparcanuck sent you a PM will contact you later best wishes to you and yours
 
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